...As soon as I can afford to pay for it... Hi there! I'm attempting to make the blog look new and different... because a) I got bored with the old look and b) I'm officially going for a diagnosis for myself. I knew ages ago that I was Autistic, and the self-diagnosis was enough for…
ALL PARENTS - you need to watch this show: https://www.bbc.co.uk/.../what-are-we-feeding-our-kidsNot got enough time to watch it? Here's the synopsis - the Food Industry, people like Nestle, are deliberately creating Ultra Processed Food so that they can make as much profit as possible. These foods are deliberately targeted at low income, working parents as convenience foods.…
The problem with being a Mum is that you see work everywhere. You get up in the morning and the bathroom mocks you… There’s hair in the plughole. There’s toothpaste all over the sink. “I’ll clean the bathroom a bit later,” you think, “after I’ve had some coffee.” So, you go down to the kitchen…
My kids are very much the typical obsessional autistic. NOS is still obsessed with Pokemon -I think that'll make it a 13 year obsession. He collects every single pokemon game he can get his hands on (including mobile phone based game hacks etc) and I don't think it's the sort of obsession that is going…
A Light at the end of a Nasty House of Horrors – please read!
Bethany’s story came to light a week or so ago. Whilst many of us in the SEN world are sickened and shocked – at the same time, we are not surprised. I have the privilege of having her Dad’s permission to share his update. We are all familiar with the concept of ‘meetings about me without me‘… well below is a spectacular version. Read on for a happier ending than usual.
For those who would like an update: Beth is locked in a seclusion cell with (10′ x 12’) with one door and no window. She is 17. She has been in seclusion for 21 months. Until recently she has a pen in her arm but I understand that a media outcry at least resulted in this being addressed. She is fed through a hatch. Just a snapshot of issues can be demonstrated by these 4 tweets:
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Audiobooks are one of the ways that my older daughter gets herself to sleep… she has real problems getting to sleep and staying asleep, so it’s a simple way for her to deal with the problem.
This morning, my very first audiobook came out! There’ll be another one out soon, so watch this space…
… which believe me is a little unusual for an author!
Just recently I have been feeling more than a little lost. My writing has been slow and getting words onto a page has been like pulling teeth. It’s the reason I haven’t posted anything here for a while; every word I can muster has been put into a WIP.
Then this morning, I woke up to some wonderful news.
The beautiful and talented Maria K. has been steadily putting her books into Audiobook form, and has quite a catalogue building up.
I’ve thought about putting my books into audiobook form, but as I’m struggling just to get my books finished, edited and published in e-book, I’ve been putting it off as I only want to focus on one project at a time.
So when Maria asked me if I was okay with her putting the Land Far Away books
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Anxiety is a big part of my life – I’ve never been able to explain how my anxiety affects my life… now I can.
I’m lucky, I have more starts at 0 than someone with a more severe anxiety problem. However, add some of my triggers and I jump from 0 to 4 without passing through the previous levels – there is no build up. Some days I wake up already on a 2 or 3 and that jump can take me to a 5 or 6.
I have rare days where I’m a 7 or 8 after the jump, but I’ve not yet experienced 9 or above… yet.
Whenever I start to explain that part of my mental illness diagnosis includes severe anxiety, I always receive confused looks. They are usually followed by judgmental comments about how “everyone has problems and stress in their lives”, telling me that I need to “learn to cope and work through it all”. I get told that I “shouldn’t let every little thing get to me” and that I’d be so much happier if I “stopped stressing over everything and just mellowed out”.
I have others that have gone so far as to make accusations about whether my anxiety is even real or just in my head. They’ll question how I could claim I’m “too anxious” to go somewhere to fill out paperwork yet am “perfectly comfortable attending things like farmer’s markets or street fairs”. I’ve tried to explain that it isn’t the same thing. I don’t have social anxiety. People and…
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Go read this article - believe me it's relevant. https://www.autismmatters.org.uk/blog/who-decides-if-im-autistic
I read through the article below and with every story, I felt more and more connected to the women telling their stories. I've self diagnosed, but should I push for a formal diagnosis this late in my life? I don't know - it's an oddly scary thought, I feel anxious just thinking about it. Why…
This explains a great deal of how I feel.
I’ve not had as much of a problem with exhaustion as Ann has, but FOMO is a big problem for me.
The post about saying farewell to the strong woman actually started off with the above title, but it grew into something else, so I’ll have another go at talking about extreme FOMO here.
Just in case there’s anyone reading who doesn’t already know and hasn’t already googled, FOMO stands for Fear Of Missing Out, and it’s defined on Wikipedia as “a pervasive apprehension that others might be having rewarding experiences from which one is absent” and goes on to mention the anxiety of missing out on opportunities for social interaction, fear of having made erroneous decisions, and regret.
Of course, everyone gets FOMO sometimes. I think it’s unlikely that anyone reading this hasn’t, at one time or another during their lives, either missed out on getting tickets for a concert, had to pull out of a race injured, been unable to attend a celebration owing to illness, or simply had…
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